Sounds a little like someone who is admitting that they are an ADDICT doesn't it, lolol.
Well, in all honesty....if your illness has reached to the point that mine has, You Are an Addict...from all the different Meds. your 'Many' doctors have you on.....boy, who would have thought it!!
Now that I've got your attention, I think it is time to tell you a little about myself.
I am a 46 yr. old African-American Woman, living day-to-day with Sarcoidosis.....which is an Autoimmune Disease that can literally wreck havoc on Every & Any part of your body.
There are many Online Sites that will tell you "What Sarcoid is"....but I AM HERE to tell you "What LIVING WITH Sarcoid is like".....THE REAL TRUTH, not a few paragraphs that you see Online....which leave out the different TRUTHS about it, either by lack of Knowledge Or sheer Ignorance.
Take your pick.....
I was appalled, about how many Sites "Shovel" misinformation about this Disease, they give you alot of "clinical" mumbo-jumbo...stuff that you have to look up in a dictionary for....and even then you don't know what the heck they are talking about.
And then there's your doctors.....who THINK they know, but really....Most of them don't have a clue.
Now don't get me wrong.....there ARE some who "do have a clue"....but they are soo far and in between that you would be lucky if you could see one of them in your lifetime.
Sad isn't it.......
Anyway, the reason why I have started this Blog....is to "Bring Awareness" to what one plagued with "Sarky" (my nickname for the disease) Lives Like.
It is not a pretty picture....but it is one that Must be told, because it is such a Rare Disease....and up until a few yrs. ago, it was Not even known....but in the almost 17 yrs. that I've had it, the Awareness has Grown.
I pray that you will be able to tune in Daily....to see what develops from day-to-day.
I won't be on EVERY DAY posting things....but I will try My Darndest to have something for you to read EVERY WEEK.
THANK YOU.......& Have a Blessed Week!!!
Naimah
Posts
5 Pieces of Advice
11 years ago
5 comments:
Salaams Mema,
Alhamdulillaah I finally got here. So glad that you started this. I'd never heard of this disorder until I met you, and I'm still a bit clueless about what it's really like, so looking forard to read and learn more from you, inshaaAllaah. Tahooran inshaaAllaah! ShafaakAllaah!
(((mega hugs)))
InshaAllah this will get out to many individuals and they too can get a better understanding of what it is....and what one goes through.
Maybe THEY know someone with this Disease, and are struggling to understand....I just pray that I CAN express MYSELF clear enough for them to "get the big picture" if you will.
I know for Me, there are a few family Members who "really don't get it"....Or they pretend like they do, but I know darn well they don't....I would hate to think that there are others out there having to go through a situation like this (meaning, having those close to you "not getting it")....it can be sooooo frustrating!!!!
THANKS for stopping by Hummy....and hope to see ya here again......LOVES!!!
As Salaamu Alaikum Wa Rahmatulahi Wa Barakatu
Naimah alhumdulilah thank you for the invitaion to your blog masha Allah, I knew adventually you would start one alhumdulilah. I pray I am able to bring beneficial reads/material to your blog insha Allah. May Allah continue to bless you and your family Ameen Love Ya Always *~Umm Aslam~*
Salaam Mema-Eemah!
Subhanallah, I truly did not know that you are a 'sarky' affected girl....I dont know what it is, but whatever it is, I pray that Allah will end your sufferings, Aameen..
'La ba-sa tahoorun Insha Allah!'
Umm Afraz
loads of hugs coming your way!
As Salaamu Alaikum Wa Rahmatulahi Wa Barakatu,
Seeing you out recently was a pleasure. I imagine that there are days when just getting out of bed is a great accomplishment. You have shared a great deal of important information here, thank you. InshaAllah you will continue your hard work with informing the readers. I look forward to checking in...InshaAllah
Peace and blessing be upon you Cuz
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