Tuesday, May 19, 2009

Okay....Day 2 of the "Pred."

Still no comfort.....but I am being very Patient.

I figure it will take at least a week (Or less I hope), for me to see Any Kind of relief.



I'm trying......I'm trying......Really I am.

Monday, May 18, 2009

PRAYERS "DO" WORK!!!!

I have been REALLY, REALLY DEPRESSED lately....because I was not sure how I was going to go about 'How to maintain my Pain & Discomfort' since my New Pain Med. script was lowered.
So after crying my eyes out one night, it came to me (from GOD) that I should get back on the Pred.

As I stated in one of my last Posts here, I was going to ask my PCP for a Script for Pred.....well, today was my appt. with him....and he gave me the Script!!!!!!!

He has me on 10 mg., twice a day for however long......Fine with Me.....For Now.
I am soooooo Grateful let me tell ya.....because I was at my wits end not knowing what was going to happen in the next few weeks.

I still have the appt. with the New Rheumatologist on the 2nd of June, and I will be bringing up a slew of concerns.....starting out with, the symptoms everyone seems to be avoiding......FEVER, ACHES, WEAKNESS, all around Flu Like symptoms.....etc.
I DO NOT want to focus on Any Pain that I may be having......just the other symptoms, the ones I CALL "Sarky Symptoms".


All the other symptoms of Pain are from either the Fibromyalgia Or the Osteoarthritis....and although my Old Doctor.....Yeah, I can say that Now (thank goodness)......seems to think that the Sarky is "at bay", I KNOW MY BODY BETTER THAN ANYONE....and I SAY, it is Still present.
So let's work on THAT.


Anywho......

All those Prayers I'd made in the Past Week Or so really payed off.....and for THAT, I am Grateful to GOD......for hearing me out!!!!!
So a note to Everyone who is reading This....."do not dispear, just PRAY....and be Patient.....HE Does hear you, and HE Will answer your Prayers".......IN DUE TIME!!!!!





THANKS......

Friday, May 15, 2009

I think I may need to return to using "The Pred."....just for a bit.


Since my Rheumotoligist is insisting on NOT increasing my Pain Meds....I think I may have to get on The Pred. (Prednisone) after all.
I really, and truly didn't want to go that route....but because I am running out of Pain Meds. quicker Now....it is imperative that I get SOME KIND of relief.....and I think it will have to be through the Pred.

My "Rheum." doctor is on Vac. for two weeks....so I am going to try and get my PCP to write a prescription for it, and I am PRAYING that he Will.
Usually, he will leave things that deal with Sarky....to the Rheum. doctor.....but considering He's on Vac., I pray that he will understand........GOD Willing!!!!



I have a doctor's appt. with my PCP on Monday.......so I guess I will swing back through here THEN.




THANKS.........

Tuesday, May 12, 2009

AAAUUGGGHHHH......!!!!


Not a Good Day today, At All......


I almost wasn't even going to come on tonight.....after My doctor "lowering" my dosage on the Pain Med., I have had soooo many Bad Days......it even kept me from going up to my nieces house today and "chill" with Family & Friends......(some family members are up from NYC & Florida).

I felt BAD about it.....but I just could NOT get it together enough to even TRY.
My body was riddled with Pain & Discomfort (Fever, Aches, Weakness.....THE NORM).


And of course......I began to have "pitty" on myself.
Boy, when am I gonna learn.....This MAY BE how it is going to be from Now On......"Ain't ya got it Yet".


Oh.....and it doesn't help that I am "going through the CHANGE".......Just Great!!!!!
All that Pain & Discomfort.....and My HORMONES "running a muck" on top of it All.




AAAUUUGGGGHHHHHH......!!!!!!

Wednesday, May 6, 2009

It's Not ONLY Pain I am going through....it's other things also.

A lot of focus is on the amount of Pain I have.....but technically, I don't Only have Pain....I have FEVERS, WEAKNESS,TIREDNESS....an All around feeling of ILL HEALTH.

But MY Doctor doesn't hear That Part of Our conversations....even though I let him know each time.

HIS Focus is on my Joint & Muscle Pain, but there is much more going on than That.
This is why I say that Sarky is Alive and Well inside of me...even though My ACE Levels say otherwise....actually, My ACE Levels are at 60 and the Range Starts at 69 I think....so I am ONLY that much away from it SHOWING that I am in Active Sarcoidosis.
Even "I" know that.....

When my symptoms Flare up, it usually starts out with a Fever, then comes the Aches & Pains....and Stiffness, Weakness, Tiredness...."just a want to lay down" feeling.
Like you got the Flu....but every day.

That is why I wanted to know exactly what MY Doctor was treating me for....is it the Joint & Muscle Pain, because THAT is what you Specialize in....Or are you treating the Whole Disease(s)....because there are Multiply symptoms that goes along with Sarky.....some of what I've mentioned above.

And there are Multiply symptoms that go along with Fibromyalgia & Osteoarthritis also.....and All 3 can have Similar Symptoms to eachother.

I just need for People in general, to know that it isn't just the Pain that needs to be focused on.....All of the other symptoms have their share of "making me feel ill" as well.
And sometimes, even more than the Pain.

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