It is an Online Support Group that I've been a Member on for some yrs. now.
I liked going on it, but fell off due to some personal things I was into.
It is a Very Active Group....and I pray that some Day MY Support Group will be As Active as it is.
It is Run by a Very Nice Lady named Kipy.....and she has done a Wonderful Job with It.
So..Stop by and check IT out as well.
http://sarcoidbuddies.blastgroups.com/
Naimah
I wasn't a regular on Facebook....and the only reason why I was even on it yesterday, is because my brother sent me an invite to join his page, lol.
Once there....I decided to search around to see if there were any Support Groups about Sarky....and there wasn't....NOT ONE!!!
So I decided to start one up Myself.....there ya go, now that's progress....lolol.
It is Very New, so not much is on it....and I only have ONE friend so far that's join it....but I am putting out the Word about it and GOD Willing, a lot of people will hear about it and Join as well.
If you'd like....you can Join it too.....aaawww, come on....It's Free!!!
http://www.facebook.com/group.php?gid=55340664645&ref=mf
Naimah
All Day yesterday, the Eve. and Last Night....I wasn't feeling too good, and Sarky kept coming back to back.
I took some time off from writing in My Blog & My "NEW" Support Group I started Yesterday....I really needed to Rest, before it got any worse.
I am feeling a little better right now (just the normal aches & pains)....and it is only 12pm, so we will see how the Day goes by.
I am All Alone Today....No Grand babies and Jeev (my 20 yr. old Special Needs son) finally went back to School Today....so I won't see him till 3pm.....so I am just going to Chill for a bit, relax and watch a little TV and post on My "NEW" Support Group....and that's it.
Have a Blessed Day.....
Naimah
Nowadays....there isn't a Day that goes by that a Tear is not welling up in my eyes....and for various reasons too.
I Cry about the Pain that runs throughout My body EVERYDAY.
I Cry about Not being able to do the things I used to do....because of Sarky.
I Cry because I am not able to Play with My Grand babies the way I want to....you know, get down to their level and JUST PLAY!!!
But Most of All.....I CRY, BECAUSE I SHOULDN'T BE CRYING....because I should be Grateful that it is not Worse than it is (and I really Am).
I Cry about THAT.....ALOT.
Naimah
I can remember, between the years of 1992 - 2004...I used to be in-and-out of Remission with this Disease.....What ever happened to that!!
It has been 3 yrs.....going on 4 yrs., that I've been in Constant Pain with Sarky...and I long for the Days of Remission.
I would go about my Day, Pain Free for the Most Part...maybe an ache here Or there....but Nothing compared to what is going on these Days....geesh!!
It is like the Word doesn't exist any More for Me.....Whyyyyy.
Some days, I will sit back and think of those days...when I could get dressed without Pain, Walk down the stairs without holding on the Rail AND without doing the "two-step" Or "Baby Walk"....and lets not forget, being able to get up and go...without having my Pill Pack attached to my Hip (really inside of my Purse...but you know what I mean).
Those Days have been soo far away from Me....that I can vaguely remember them.
So I Ask....."Where Are You, Oh Remission"....and do you have plans on revisiting Me any time soon???!!!!!
Naimah
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