So Far....So Good Today!!!

All Day yesterday, the Eve. and Last Night....I wasn't feeling too good, and Sarky kept coming back to back.
I took some time off from writing in My Blog & My "NEW" Support Group I started Yesterday....I really needed to Rest, before it got any worse.

I am feeling a little better right now (just the normal aches & pains)....and it is only 12pm, so we will see how the Day goes by.


I am All Alone Today....No Grand babies and Jeev (my 20 yr. old Special Needs son) finally went back to School Today....so I won't see him till 3pm.....so I am just going to Chill for a bit, relax and watch a little TV and post on My "NEW" Support Group....and that's it.

Have a Blessed Day.....




Naimah

I Cry.....Alot.

Nowadays....there isn't a Day that goes by that a Tear is not welling up in my eyes....and for various reasons too.


I Cry about the Pain that runs throughout My body EVERYDAY.

I Cry about Not being able to do the things I used to do....because of Sarky.

I Cry because I am not able to Play with My Grand babies the way I want to....you know, get down to their level and JUST PLAY!!!


But Most of All.....I CRY, BECAUSE I SHOULDN'T BE CRYING....because I should be Grateful that it is not Worse than it is (and I really Am).


I Cry about THAT.....ALOT.





Naimah

Remission......"Where Are You"!!!!!

I can remember, between the years of 1992 - 2004...I used to be in-and-out of Remission with this Disease.....What ever happened to that!!

It has been 3 yrs.....going on 4 yrs., that I've been in Constant Pain with Sarky...and I long for the Days of Remission.

I would go about my Day, Pain Free for the Most Part...maybe an ache here Or there....but Nothing compared to what is going on these Days....geesh!!
It is like the Word doesn't exist any More for Me.....Whyyyyy.

Some days, I will sit back and think of those days...when I could get dressed without Pain, Walk down the stairs without holding on the Rail AND without doing the "two-step" Or "Baby Walk"....and lets not forget, being able to get up and go...without having my Pill Pack attached to my Hip (really inside of my Purse...but you know what I mean).
Those Days have been soo far away from Me....that I can vaguely remember them.


So I Ask....."Where Are You, Oh Remission"....and do you have plans on revisiting Me any time soon???!!!!!




Naimah

Continue.....

Alright, the meds. are in me...but things are still not the same.
I am really not myself Today for sure......

I will just wait it out till the meds. begin to work....in the meantime, I am going to lay back and rest my body (not that I've been doing things to have the Need to rest....)....I think it will be best if I chill for a while, there is something going on for sure....and I don't have a clue of why.
You know, This usually happens every now & again....but not an All Day Thang.

It is weird.

Okay, I will be back on later on tonight Or some time tomm. if I am not feeling better, so....until then.....be Safe & be Well!!!!




Naimah

Today is NOT a "GD".....I just can't understand it some times!!!

I don't know why....but Today, My symptoms are coming back to back....and quickly too.

I got up pretty late Today, because I didn't have any of the Grands this morn.....so I too advantage of it and slept in.
And what woke me up was, my sister came by to visit.....she came upstairs and woke me up and told me that it was around 11ish....I was like 'WHATTTT".

So anyway, while she sat at my computer, I told her to tell my son to send up a banana and something to drink so I could take my meds.....I was a couple hours off from taking them at this point.

I waited a few before finally getting out of the bed....and at first I thought everything was fine, but then after being downstairs for a bit....the symptoms started to come back again.
Now I am getting a little worried...because I JUST took the meds. about an hour prior, so why the symptoms.
I just don't understand it some times......

I held off as long as I could.....and it started to get towards 1:30pm I think....when I HAD TO take the next dose.
Now normally, I would wait till 4 hours went by Or that it was coming up on 4 hours....but it was like only 3 hours had gone by and the symptoms were starting to RAGE.
I just can't understand it some times......

Okay....it is now a few mins. to 6pm and My whole body feels like it is on Fire.
It started, as it ALWAYS does....in my Mouth, I can feel the Fever welling up in it....then it slowly works it's way down the rest of my body....until I can't stand it no more, and to be honest....I shouldn't have waited THIS LONG....because it is just going to take longer for it to work, because I waited soo long.....but I had to, it was wayyyy too close to the last dose!!!

And it is not like those Days where I am doing something and I lose track of time....I wasn't doing anything to lose track of time....the symptoms are just creeping up on me sooner than normal.
I just can't understand it some times......


I am going to have to pause here for a moment, because it is really intense, the pain is throughout my entire body....the Fever alone is making me weak, and Every Joint & Muscle is throbbing....I honestly feel like Crap.

And THIS Ladies & Gentlemen....is what MY BODY goes through on a Daily Basis, except...I take the Meds. to "Mask" the symptoms for a while....so I am not feeling it, BUT I KNOW IT IS THERE!!!
I just don't understand it some times.....


PAUSE......