LONG TIME....NO HEAR, RIGHT, LOL.

Hi Folks, it's Me....Naimah, I know...I know, it has been like 2 yrs., I can't BELIEVE it's been That Long since I've posted here.
I've been on a VERY Long Journey, a combination of Personal, Health and some other stuff, lol (recreational).....but I'm BACK, not sure for How Long though.

Since my Last Post, I've been OFF sooo many meds. THANK GOD...smh, there were wayyyy too many that I was on, and I am sooo glad I am only down to 1 Or 2 Now.
STILL SICK....nothings changed there, but I DID figure out (on my OWN too) that Not ALL Meds. work well together (taking them at the same time of the day that is), so...the MAIN MED. (the One that is Strongly Needed to get through the day), the Gabapentin...can not be JOINED with Any Other Med. Or Vitamin I may be taking throughout the day......so what I do NOW Is, I take THAT MED Alone and about half hour to an Hour Later, I'll take any other med. that's needed to take (like Blood Pressure Med. Or Vit.)...it took me a LONG TIME to figure it out, but I got it Right Now, lol.

It's late here, so I will have to come back through tomm. (GOD Willing) and fill ya in on the rest of my journey, it's a long one....so I hope your Up For It, lol.


Good Night, and as always....Thank You for reading my Blog (smiles)

SORRY......

I apologize for Not posting in a while....a lot has been going on since I've last posted, and when I DO find the time...I will Post about it.....but for Now, I will just say.....AAAUUUUGGGHHHH!!!



THANKS for stopping by to read My Blog.....

Guess What's BACK.....

The FOOT PAIN is BACK......sighhh.

It was gone for a while....a few Months to be exact, but since about last week...I've noticed that I had a lot of Pain upon getting out of the bed, and if I've been sitting for a while....oh, and also if I am on them for too long (like while shopping, out to do laundry, Or even just moving around the house a too much).

They feel like they are swelled up also.....but they're Not.
And don't get me started on the sharp pains that "ring through them" every now & again.....OUCHHHH!!!!





THANKS.....

Reaction from the New Med.....YIKESSS!!

Well I won't be taking any more of the New Med. Sevella....it did my body REAL BAD the other night!!!
And I ONLY took One dose of it.

I honestly thought I was going to die....all things darn Side Effects started Flooding in Me....Or should I say...."Out of Me".
First off, I felt a little....funny, like things just weren't right....ya know.
Then my hands started shaking.....and I was sweating.....also, my thumb on my Left Hand started to Twitch......badly, like I've never seen before.....TALK ABOUT BEING SCARED!!!!

My Heart Rate went up as well....and then came the the Anxiety, but I was able to Control That through Prayer & "self control" techniques.

Well I guess it is safe to say.....I will NOT be using That Med. Again!!!.....I would rather Live with the Pain & Discomfort, than to have to LIVE like That.





THANKS......

Names of New Meds.

Okay....the names of the New Meds. I'm are:

Gabapentin 300 mg. (Neurontin).
Propoxyphen-APAP 100-650 MGTEV (Darvocet)......for Pain (PRN).
Sevella (it hasn't come in as yet....pharmacy is still trying to get a hold of some for me).
Women's Multi Vit.
Calcium with Vit. D.


That's It, for Now.




THANKS.....

I had a Doctors Appt. Today with My Rheumy....

So I went to see my Rheumy. today.....I have to confess, I did not even remember that I had an appt., until I checked my ph. messages on Monday....from Sunday, lolol.
Anywho.....I went, and I was comfortably with the Game Plan.....he is going to Increase the Gabapentin that he has me on (it is not working to it's full capacity....still in alot of pain, but not like before).
He also put me on a Pain Med (can't remember the name as yet, the script is still in the drug store....lolol, but I THINK it is Percocet).
And the other Medicine is one of those New Meds. out there for Fibromyalgia....AND, can't remember the name.
I will get ALL the names of the Meds. as soon as my daughter can get her and go pic them up for me...lolol.

I am excited to try this NEW Regime of Meds.....and GOD Willing it will Work THIS TIME.


I will be giving an Update Real Soon with the NAMES of the Meds......AND, how everything is working for Me.





THANKS for checking in.....

I had the appt. with the Disability Doctors today.

For the most part, the day started off good....until I had to WAIT in the waiting room for the longest time ever...buy time I got in to see the First Doctor, I was "SPENT"....meaning, I was in soooooooo much pain that I don't know how I got through it.
THEN.....I had to go back out and wait to see the other Doctor (they allowed me to have both visits today so I wouldn't have to return tomm.)...I could barely sit still....I COULD NOT WAIT TO GET BACK HOME.

My shoulders felt like they were ten times their size.....PAINNNNNNFULLLL.
And my Back & Spine were in High Gear...!!!!...something told me to bring my cane, and I did.

I'm STILL in pain......


Now it is just a WAITING GAME I guess Now.....GOD Willing it will go in My Favor!!!




THANKS......

Well the Days are Near......

Monday & Tuesday that is....lolol.

I have my appt.'s on Monday & Tuesday with the Disability Doctors.......I pray that ALL goes Well & in My Favor!!!!




THANKS......

My Hips & Spine is on FIREEEEE!!!

Not sure if the RAIN has anything to do with it.....all I know is, IT IS ON FIRE!!!

It literally feels like someone is putting a hot lighter to them......and I am NOT exaggerating either.
I can't sit for long.....Or lay for long, and when I was waking up this morning (late morning), I could barley lay in the bed right....if I layed on my back, IT HURT LIKE CRAZY.....if I layed on my stomach, IT HURT A LITTLE LESS....and when I layed on either side (left Or right), I was able to lay that way for a longer period of time than the other two ways (back & stomach).

It was horrible....

I think while I'm sleeping, I must be OUT OF IT to realize that the pain is there....but as soon as the morning comes.....OH MY GOSHHHH....it let's me know about it with the quickness!!!!!


I will be starting a NEW Med. soon (Gabapentin 300 mg. capsule GRE)....I will start another Thread about that soon.....I just pray that that will take care of Most of My discomfort.




THANKS.......

I got the Call yesterday for my appt. with the Disability Doctors

They called to let me know when the date & time of the appt. was....it is for the end of this Month, July 27th & 28th...for some reason they do it for two days she said.
I am looking forward to the visits, and I PRAY that all goes well....and they BEILIEVE Me and understand what I am going through.

When I think of ALL those people out there who ARE on Disability.....AND REALLY DON'T NEED IT....it sickens me.....because that is taking away from those like ME who REALLY DO NEED IT.
Anyway....Only GOD knows who will actually get it....and who won't.....I JUST PRAY THAT I AM ONE OF THEM WHO DO.....and I pray for ALL those who really do need it (like me) and are waiting an answer regarding their case...May they get their prayers answered as well.


THANKS......

I can see This is going to be a Longggg Haul...sigghh.

For the past Two Days, I have been feeling Very Crappy......and yesterday was the first time that I noticed the "knee problems" again.
While I was on the Pred., my knees were not hurting as much as if I WASN'T on the Pred.....and NOW, the Creaks & Pain....and the sound of "leather pants rubbing" IS BACK.

I woke up Stiff.....but not as bad as before, but you can 'bet your bottom dollar' that the Worst of the Stiffness WILL be back....no doubt.

I felt Really Horrible today (NO ENERGY AT ALL, among other things)....but I know the worst is yet to come (because I am not on the Pred. anymore)....I am not looking forward to it to say the least.

Something I am noticing though lately, is the fact that I have been having alot more Indigestion....not sure what THAT is all about, but it was sooo bad last night...I honestly thought I was going into a Heart Attack.
ANYTHING that I eat is causing it.....I will be letting my PCP know about that.

Today's ill health made it Very Difficult to care for my Grands.....but I did it, don't know how....but I did it.
It became much easier when my Granddaughter left....I LOVE HER TO DEATH, but she is Alot More active than my Grandson....she is a Ball of Energy....of which I had NONE of Today.
So when She went home...and it was just my Grandson & I, I wasn't as stressed and could deal with my illness better.....he is soooooooooo layed back and easy-going, I don't have to reprimand him as much as I have to do with my Granddaughter.
She is just sooooo inquisitive....Bless her lil heart, and does not stop inquiring....NOTHING stops her (unless she is ill that is, lol).

Anywho.....I have a long road ahead of me, and I just Pray to GOD that I will be able to Function enough to be an asset to My family & friends when they need me.




Thanks...........

Well....today's visit to the Pulmo. Doctor didn't go over too well either...sigghh.

Although HE was a Gem, his suggestions for me I wasn't too pleased with.

He wants me to go back to the Same Doctor that had his back to me the whole visit (the Rheumo.)...but I refused, and said that I will stick with the New Rheumo......until He messing up.



He also said that He doesn't think that it is Sarky that's bothering me......He says it is the Fibromyalgia......sigghhhh, once again...I think a doctor is Wrong.

I have NEVER read Anywhere, where it says that one with Fibromyalgia suffers with what "I" suffer with.....He also said that the symptoms I am describing are NOT of what one experiences with the Flu....(I told him that I have Flu Like Symptoms)....He said that they are in line with the Fibromyalgia.....aauuggghhh.....I am soooooooo frustrated to say the least.



He suggested that I get on some Medicine for the Fibromyalgia and see if that works....and I MAY have to try several of them till I find the one that Works.....and if NONE OF THEM WORK, Then he will try another route.....I tell ya, I am sooooooooooo tired of going to doctors right about now.



Again, I felt REAL comfortable with the visit with him....but I am not convinced that what I am experiencing is from Fibromyalgia......I WILL STAND BY MY THOUGHTS OF IT BEING SARKY!!!





Soooo....the prays will continue.

Had a "blahhh" day today......

I am not sure what is going on....and Why, but....for the past couple days, I noticed that my Sarky Symptoms are coming on stronger than normal with the Pred.

This morning I woke up with extreme pain in my Hips, Spine, Up & Down my legs....and few other spots I can't remember, but I know that it was there.....ANDDD, I feel like crap!!!
I am sooo weak, and sore all over...I feel like I did a ton of exercises the day before.....and I hadn't done Anything.
I refrained from taking any Pain Pills.....don't have much left and what I do have, I may need for a more severe case of the Sarky's.

It really seems like the Pred. is wearing off on me...ALL Day Long I was feeling like this, CRAPPY....but I was trying to hold it together because I had to care for the Grands.
I am praying that tomm. proves to be a better day.....I really felt like staying in the bed all day today.
I am starting to get really worried Now.....because if NO ONE can come up with a Plan to rid me of these symptoms so that I can function day-to-day....What will become of Me.
I won't be able to care for the Grands....Or anyone else for that matter, even Myself....I will literally be Bedridden....and I'm not joking.

I called and made an appt. with a Pulmonologist....and that is set for July 6th (GOD Willing), I tried to get it for a sooner date....but wasn't able to get a slot for the early morn.....Oh Well, it is only two weeks away.
I had called my PCP to see if he can take me off the Pred.....just so "I" can see what will happen, but he suggested that I stay on it until I see the Pulmy. doctor.


Ooohhh, I dread to find out how the next few days are going to be like......

No News, is Good News..."Well, That's what they Say"!!!

I was told that I needed to "update" my Blog with some info....lolol, but to be honest.....I really haven't a thing to say.....which I am not sure if that is Good Or Bad, lolol.

I am still having Hip & Spine Pain....and it is REALLY hurting today, I think it is because of the Rain we are having.
Other than that....nothings changed.


I am still waiting to hear back from SSI/SSDI.....but they did say it would take a few months before I'd hear Anything.
I spoke with a friend of mine yesterday, and she gave me a Name & Number to Her Lawyer....so, I am waiting to hear what they say...and if I AM denied, then I will be giving this guy a call.

I've become a Facebook Junkie...lololol, and loving it up, lolol...I'm able to be in touch with my Family & Friends.....so that nice!!!

Also, waiting for next week to roll around....my youngest Son is about to Graduate from High School (he is the one that is Physically & Mentally Challenged).....it should be Very Exciting!!!


Well....that's it, For Now....Until next time.....!!!

THANKS.....for reading my Blog.


Naimah

hhhmmm....wondering if Sarky is in My Nervous System Now??

I THINK.....since yesterday, I've been having this "twitch" in my Thumb on my Right Hand.
All of a sudden, out of nowhere....it will start twitching, and it even throws me off if I am in the process of doing something with That Hand.

It is a good thing that my New Rheumy. is asking that I see a Neurologist, because if this goes on for too long....I'm gonna need it looked into.


Alittle worried Now.......

Surprisingly....I had a Good Day yesterday!!!

Just a few "minor" aches & pains here and there....but overall, it was Good.

The weather was Great, and we had to go out of town to my son's doctors appt.....had packed a Cooler with Sandwiches & stuff.....and one of the Grands, lol.
The doctors visit was longer than I expected it to be....but it was an early appt., and when we got out....the waiting room was Packed, so I am totally grateful that ours was early.

The ride there & back was pleasant also.


Now Today, well that is a different story......oh well, you can't have it all....lolol.
I am feeling alot of aches & pains today.....and I am thinking all the rain we had overnight & this morning may have something to do with it.
My hips & spine are reallyyyy giving me problems today.....but I am dealing with it.....have no other choice But Too.

I need to make some doctors appt.'s soon, but can't do so until I have enough money for co-pays.....Sad isn't it, can't go to the doctors because you can't afford even the Co-Pay....aaauuuggghh!!

I think I will have to set some time aside for next month for all the visits.....maybe even borrow some money from the "kiddos".....I'm sure they won't have a problem helping out for that.

Well....it didn't turn out the way I'd hoped, but....

The visit today with my New Doctor didn't turn out the way I'd hoped it would....but he did say he would treat me for the Fibromyalgia.......but not the Sarky.


He is recommending that I see a Lung Specialist for the Sarky.
HE SAID.....that Rheumy's don't treat you for Sarky....Only Pulmonalogists (sp. ck.)......WHATTTTT!!!

Then why the heck was I going to see my Old Doctor for.....he was a Rheumy.....and I was seeing him for my Muscle & Joint Pain that came from.....Sarky.

Anyway, I wasn't "blown over" with him to say the least......but at least he will treat the Fibromyalgia.


I have to call my PCP and see who he wants to send me to next (Pulmonary)....I know one thing, it won't be my Old Pulmo.....he blew that yrs. ago.


I am not overjoyed about the whole day......but at least SOMETHING came out of it.
He also prescribed me some New Meds. to take for the Fibromyalgia Pain.....boy my Spine is still hurting.
I still have to call the Pharmacy to see what Meds. He ordered though.....I'm not paying for something I can't take (that I tried before and didn't work).


I will post later, what he actually called in for.

Now the Spine is acting up!!!!

It had been doing so all along.....but after the weekend, it REALLY went crazy.


My son got Married on Sat....and I was taking Tons of Pics....so all that back & forth did some damage on the ole' Hips, Knees & Spine.
I felt some of it That Night.....but it didn't Really get to me until the next day.
And I mean ALL DAYYYYY.

Sunday night was soooo horribly.....there was NO position that I could be in...Not Sitting, Standing....Or even Laying Down........AWFUL!!!

And today it is Still Hurting......
I tried to bend down......and not with my knees, Cause Ya Know That Ain't Happening.....and I thought my back was going to dislocate itself some how.......I was sooo scared, and I screamed out soo loud that My Mother said....."let me do it".

I pray that I can get some sleep tonight, and that I won't be in That Much Pain.


Man....this is bad!!!!

I had my Ph. Confrence today for SSI/SSDI

I guess it went well.....

She asked a few questions about my health....and I told her.....and she asked about my doctors.....and I told her.....then she told me to send out the "Request Form for the Doctors" as soon as possible......and I did, today.

She also mentioned, after I asked her about it....lol, that it would take like 3 months before I would hear Anything from them concerning my case.
And I then proceeded to ask Her if it was true that "one always gets rejected the first time applying".....she laughed and said, "No....there is absolutely No truth to that, but people ALWAYS say it is so"......and I laughed with her.
I pray that she is right......


Anyway.....I guess I just have to wait it out like everyone else does......finger biting & all!!!!

In the meantime, I am looking forward to my First Visit with the New Rheumy next week.....and pray that All Goes Well with that.

My Left Hip......

Yesterday was pretty good, but today is another story......probably because of the good day yesterday.
It is not like I over-did it.....but hey, maybe I did......I was doing a lot of back-and-forth from the house to outdoors......slowly though.

Well today, my left hip is hurting like nobody's business......!!!!!!!!!!!
Oh and the BURNINGGGGGG.....it feels like it is burning a hole right in my hip.
And it didn't help that my Grands wanted me to keep getting up & down to get them things today.....boy I can't wait till they can do it themselves.

I can't even sit still for too long....I have to keep switching positions.....OUCHHHHHH!!!!!


I am going to lay down now and rest my hip....and pray that THAT helps.



THANKS......