Living day-to-day with Sarcoidosis, Fibromyalgia......AND Osteoarthritis!!!

You have autoimmune th1 disease that doctors have ...

2010-03-16T11:32:34.717-04:00

You have autoimmune th1 disease that doctors have labelled .Please stop taking the Vitamin D and calcium for 2 weeks and avoid as much sun as possible to see if your pain dimminishes.
Vitamin D for TH1 is bad news.

Wa Laikuum As Salaam..... Actually, I DON'T h...

2009-07-21T19:37:55.845-04:00

Wa Laikuum As Salaam.....

Actually, I DON'T have it in my lungs this time (did in the past yrs. though)and No, I haven't tried Black Seed Oil THIS go around....but in the past I did, back when I wasn't on any Medicine at all, and was going the Holistic Route.
And No, I do not have thyroid disease....from My understanding, my doctors did All the testing for that.

Asalaamu Alaikum I just read up on this and since...

2009-07-21T09:50:53.626-04:00

Asalaamu Alaikum

I just read up on this and since it affects the lungs I was wondering if you had tried black seed oil which is great with lung problems. Also did you develop thyroid disease along with this?

aaawwww...Wa Laikuum As Salaamu Sis....I MISS YOU ...

2009-07-13T23:27:33.970-04:00

aaawwww...Wa Laikuum As Salaamu Sis....I MISS YOU & MMC.....I am having Major Major log on problems so I don't know WHEN I'll be back on there....it sucks!!

But thanks for stopping by my Blog....and plz tell everyone @ MMC that I Miss Them and hope to be back there soon...InshaAllah.

Salaam, Sorry to read all this sis - just wanted t...

2009-07-12T06:23:05.438-04:00

Salaam, Sorry to read all this sis - just wanted to send you big hugs and hope to see you on the forum soon! Umm Ibrahim x

Thanks Humayraa....I KNOW you mean well, and I WIL...

2009-07-08T18:49:06.452-04:00

Thanks Humayraa....I KNOW you mean well, and I WILL take it all into consideration....after sleeping on it last night, I decided that I will try and see it His Way....so maybe it IS the Fibromyalgia....what do I do, I go from there.
I can talk to my Rheumo. until Monday, and then I will see what meds. he can give me for the Fibromyalgia....as it stands, I am off of All but 1 Or 2 Meds.....now all I can do is WAIT.

Btw....IT IS SOOOOOO GOOD TO SEE & HEAR YOU!!!!!.....MUAAAHHH TO YOU & "B".

Good to see another update from you after 2 weeks....

2009-07-07T17:31:25.417-04:00

Good to see another update from you after 2 weeks. So sorry that you feel as though you're going around in circles with the doctors. Perhaps just go along with him and see what the end results will be? Just a though!

My previous doctor DID....before I came up in his ...

2009-06-30T19:50:47.339-04:00

My previous doctor DID....before I came up in his office one day without being on ANY Pain Meds....I did that on purpose to show him how I ACTUALLY AM without the Meds....you know, so it can be documented....well the Man thought the discomfort that I was having was due to the Med....He THOUGHT I was addicted to the Medicine and those symptoms that I was having was from the Vicodine....!!!

Fool that he was, I tried to tell him that THESE SYMPTOMS have been present from Day One...back in 1993, when I wasn't on ANY MEDS....but he didn't want to hear me out OR believe me, sooo......he got fired!!!

But before I Fired Him...he decreased my Meds....and I was forced to use Double the Dose to Rid myself of the Pain & Discomfort.....aauugghh.
Anywho....to show you that I am NOT AN ADDICT OF ANY KIND....I was off of the Vicodine for a Whole Month....now, I know One Thing...if I was ADDICTED to the Vicodine, I would have tried to sell my child for Some, wouldn't I.....!!!!

So, I am on the Prednisone....and that takes away the Sarky Symptoms 75%....there is still the 25% that still puts me down most days.

Hopefully, the Pulmo. doctor will shed some light......

They dont prescribe you enough pain pills for the ...

2009-06-28T14:16:10.466-04:00

They dont prescribe you enough pain pills for the month?!?!?!? thats crazy!

Thank You "Anonymous".....

2009-06-11T19:59:11.152-04:00

Thank You "Anonymous".....

Demand Full social medicine in the USA. It is no s...

2009-06-10T02:48:40.572-04:00

Demand Full social medicine in the USA.
It is no socialism or communism.
I too have sarcoidosis, MRI, Medialospocpies, bloods, imaging are are paid by the state fund.

Freedom - Shelter Safety Food & Health!

I have pretty good insurance, but things get kind ...

2009-06-06T17:31:48.171-04:00

I have pretty good insurance, but things get kind of "technical" with insurance co.'s...all of them.

And NO....there is NO Doctor that specializes in Sarcoidosis....if you have it in a particular part of your body....that is the Doctor you go see....example: if it is in my lungs....Lung Specialist....if it is in my Joints/Muscle....Rheumatologist...etc.

Unfortunately, I am feeling it All Over My Body, so I will have to see Several Doctors at one time....siggghhh!!!!

Thanks for asking though sweetie...

How good is your isurance? Why do you keep getting...

2009-06-05T22:45:03.981-04:00

How good is your isurance? Why do you keep getting these sucky doctors?

Isnt there a way you can find a doctor that specifically deals with what you need them to?

oh, and Thank You for visiting my Blog....!!!!

2009-05-28T13:45:18.067-04:00

oh, and Thank You for visiting my Blog....!!!!

Wow....amazing!! I was diagnosed with "Sarky...

2009-05-28T13:44:44.918-04:00

Wow....amazing!!

I was diagnosed with "Sarky" since 1993, but I am absolutely sure it was hanging around for some time before that.....at least a yr.
Because I was having major, major symptoms in 92', that is what prompted me to go to the doctors in the first place.

And no, I am sorry...but I haven't gotten that far in the "techno" world to do the twitter thang, lololol.

I'm sorry about your Whole Left Side Pain & Discomfort.....GOD Willing, it will be relieved soon.

Hi there. This is my first time reading your blog...

2009-05-27T21:30:48.050-04:00

Hi there. This is my first time reading your blog. Funny, the very first time and I am having the same pain as you are. My left hip. The only difference is that my pain is traveling down my leg to my ankles. So my whole left side + my right shoulder.

How long have had Sarcoidosis? Do you Twitter?

info on osteoarthritis here - Osteoarthritis - Joint Inflammation

"armouris".....THANK YOU for the Link, it was VERY...

2009-05-21T19:05:11.042-04:00

"armouris".....THANK YOU for the Link, it was VERY informative!!!

info on osteoarthritis here - Osteoarthritis - Joint Inflammation

As Salaamu Alaikum Wa Rahmatulahi Wa Barakatu, Se...

2009-05-13T10:13:00.000-04:00

As Salaamu Alaikum Wa Rahmatulahi Wa Barakatu,
Seeing you out recently was a pleasure. I imagine that there are days when just getting out of bed is a great accomplishment. You have shared a great deal of important information here, thank you. InshaAllah you will continue your hard work with informing the readers. I look forward to checking in...InshaAllah
Peace and blessing be upon you Cuz

Btw, soo sorry to hear about ALL Your illnesses (h...

2009-05-12T22:36:00.000-04:00

Btw, soo sorry to hear about ALL Your illnesses (hey, did I spell that right, lol)....it is NO Picnic having multiply "illnesses" is it....Yikes!!!

You know what "anonymous".....that is a ...

2009-05-12T22:35:00.000-04:00

You know what "anonymous".....that is a good question.....I KNOW there is a Link between Fibromyalgia & Osteoarthritis (although it went Right Over MY doctors head....siggghhh).

hhhmmmm, I must check that Blog out...lolol, Thanks.

Naimah

Hmmmm. I was diagnosed years ago with Fibromyalgia...

2009-05-09T21:01:00.000-04:00

Hmmmm. I was diagnosed years ago with Fibromyalgia, then Osteoarthritis, then Sjogren's Syndrome, goiter, hypothyroidism, COPD, asthma ... until I almost died from an acute exacerbation of previusly undiagnosed Sarcoidosis. Wonder if there's a link between sarc and fibro....

How about "sarcoidosishurts.blogspot.com'?

As far as the Surgery is concerned....yeah, it wou...

2009-05-02T23:28:00.000-04:00

As far as the Surgery is concerned....yeah, it would be the artificial cartilage "thingie", lol.
I have sooooooo much pain in my knees that he said if the Pain Meds. & the Antiinflammatory Meds. don't work.....than the only other solution is Surgery.
I will find out more when I speak with the Orthopedic Surgeon.

And as far as speaking with my doctor on my Next Visit.....Well, GOD Willing....there won't be a Next Visit...Will Him anyway.
I plan to call my friends doctor on Monday to see if they are taking New Patients....and if so, THEY may be my NEW Doctors (depending on how THEY ARE that is).

"......Funny how obesity = well developed & well nourished! LOL!....."

Yeah....and the truth is.....I AM FAR FROM "NOURISHED"....lololol.

Naimah